"I spend most of my days crying, because you just don't know what the outcome is, how long she's going to live, or the quality of life," says Monika Moser.
Moser thought her daughter Annabeth was going to be healthy just like her other two children when she was born on 11-11-11. She found out a month later, that her date of birth wasn't the only rarity.
"She said your daughter has Trisomy 9 Mosaicism and at the time I didn't even understand the words that were coming out of her mouth, I couldn't even pronounce them," says Moser.
The disease has caused severe damage to Annabeth's brain and she has trouble breathing, hearing, and seeing. Monika later found out that she was one of 100 in the world and the only one in Nevada that had it. She's been able to communicate with a number of other parents about the disease on a facebook page.
"It's like all of our kids are experiments, because doctors don't really know the outcome. So we vent, we compare notes," says Moser.
In addition to the physical, emotional, and financial toll this has taken on the Mosers, there's also the matter of getting Annabeth to the doctors she needs in Sacramento, a 4 hour drive away."
"She's an expensive child, she's really expensive," says Moser.
The over $25,000 in bills that have accumulated from Annabeth's treatment alone have become too much of a burden for Mr. and Mrs. Moser, who are both out of work.
"The economy is horrible, i don't want to burden people with my problems, but then I don't really know what to do."
The Mosers say, they'll still do whatever it takes to fight for their daughter.
For more information and to help donate to the Moser's cause click on the link below.