SPARKS, NV - To look at him now, you would have no idea Mason Hook was a very sick kid at six months of age.
The two and a half year old is full of energy.--quite a difference from the first year of his life, where doctors initially diagnosed him with Crohn's Disease.
“Symptoms started getting worse. His bowel movements increased by three times and it eventually got so bad we were calling the doctor every other day. He called us one day and said, I talked to Dr. Hymen at UCSF. He is one of the leading Gastroenterologists there, he said he wants to see you down there today.,” says Sara Hook
Mason was eventually diagnosed with a rare genetic disorder, so rare he is one of only 10 people in the world with it.
“He's the second case ever at UCSF with this,” Steven Hook.
The treatment: A bone marrow transplant.
With typical Mason might, the two year old not only survived, but has thrived after the procedure.
However, while the family has insurance to pay for things like prescriptions, $49,000 dollars is still not covered.
Enter Guy Dailey, among the hundreds of people who have followed Mason's journey on Facebook, he wanted to do something for a little boy whose story touched the burly biker.
“I talked to some of my brothers and I said hey I want to put this together. Spoke to my girlfriend and she was like, "you want to do what?" I said, I think we can so something for this kid. She said go for it,” says Dailey the Mighty Mason Poker Run organizer.
Dailey says he's gotten dozens of donations, including prized Reno Aces infield reserve tickets, and a ceremonial first pitch. The Poker Run for Mighty Mason begins this Saturday at nine thirty in in the morning at Road Rider in Reno
Organizers say you can walk or even drive your car in the poker run.
But if you can't make it in the morning, you can come to the Black Tangerine where the run will end at about 4.
Three bands will play, the silent auction, and raffle will take place here, and it will be an opportunity to help Mason with his medical bills.